Saturday, January 24, 2009

I am a HORRIBLE blogger

This is probably because I have class everyday except Friday, Hailey has therapy everyday except Wednesdays and Friday's and I work Wednesday, Thursday and Friday. I have a test in anatomy every Thursday and homework in that class every Tuesday. I am a little busy lately.

Hailey is learning to walk now, which I'm VERY happy about. She finally started crawling on all fours about 3 months ago maybe. Her PT is getting her some orthodicts (sp) and hopefully that will help her a lot. She still refuses to feed herself but one thing at a time right? She has learned the sign for baby and does it every time someone says "Aww" "love" or "baby". She hugs her dolls now too, which makes me happy, because she is showing that she understands some abstract concepts. My baby is so smart, I just wish everyone could see this about all people with DS.

Sunday, November 23, 2008

I got an award :D

Kick Ass Blogger Award

It makes me happy :D. Thanks JRS over at

I've been busy working and being with Tre since he took some vacation time. It's been nice having him back lol. I still haven't got any Christmas shopping done, and I'm trying to look into HUD housing, but I feel a pain in the butt coming on sometime soon with that. At 9pm tonight I have to call my former employer to get paycheck stubs that SS want's or Hailey's SSI checks stop, which we CANNOT afford.

Money sucks when you don't have any. I guess that's why I'm going to school right?

I don't know what else to say, i guess I'm a little down right now :/

Thursday, October 30, 2008

Fall Festival

Hailey's developmental therapist invited me and Hailey to the fall festival at her chruch tonight. We went, but it was soooo cold we didn't stay long, but Hailey played on the swings and slides and she didn't really like them, they scared her I think. But it was nice being invited somewhere, it get's sooo lonely being cooped up in the house with the baby sometimes. I mean I love being with her, but all stay at home mom's know what I mean.

Tommrow I'm going to take her trick or treating with her grandma and aunt. It should be fun, hopefully not too cold.


Sunday, October 26, 2008

Haileys first months *picture post*

This is Hailey in the NICU a day after she was born. This was a few hours before her surgery. She was soooo tiny and swollen. She wouldn't take the paci *gee i wonder why, couldn't be the og tube could it?* That hat was SOOO huge on her that it went past her eyes. No one knew that she had DS yet.

Here she is about a week after her surgery. The nurses had just given her a bath *I was WAYYYY to scared to* so that explains her monkey hair lol. There are socks on her hands because she hated the oxgen and og tubes. The og tube was full of dried blood and gross biley type stuff.

She's been a grandma's girl right from the start! ST wanted us to try the pacis as often as possible. She HATED them.

Her face was so tiny that all the tape and bandaids could hardly fit. She was a tapey mess all the time.

Daddy was scared to hold her because of all the tubes. But when he finally did he wouldn't put her down. It was the most heartwarming thing in my entire life.

Those newborn diapers were SOOO big on her. It was sad/funny. The only way to calm her down was to hold her hands and hum to her. We did that often.

WE'RE HOME!!! That boppy pillow was a life saver for her. It helped her ALOT with head control.

That's where she slept, ate, and played for quite a while. Grandma didn't want her to get cold so she bundled her up *It was only September btw*

Can we say JAUNDICE? lol We couldn't tell if she had it or if she was just colored like her daddy. Needless to say, she had it.

She LOVED her hippo gym/tummy time mat.

Halloween last year. She HATED her costume, but we went to Burger King because one of my friends dressed up AS the Burger King and she fell asleep and forgot all about it!

That's all the pics i have on this computer. I need to get her birthday pix uploaded soon.

Bye <3

Sunday, October 19, 2008

Ignorance at it's finest

I just got smacked in the face with a big ole dose of ignorance.

Down Syndrome Victims?!?! I HIGHLY doubt this person EVER met anyone with DS.

Elmo *sigh*

I told myself that if I ever had a child, they would NOT be obsessed with Elmo like almost every other child on earth. Hahaha I laugh to myself these days. Daddy got Hailey an Elmo that giggles when you move his head. I hate love it so much. Well Hailey loves it soOoOo much. We've already been through one, and her birthday was only in August. I got her an Elmo/Cookie Monster ball the other day, and Grandma got her an Elmo pull along ball. And I got her an Elmo chair that giggles and shakes. She doesn't like the giggling, she looks around and her eyes get wide. But she sits in that chair like a big girl now! Today I sat her down in the chair so I could get something to drink and she said there, held onto the arm rests and watched football.

That child adores football. When I get around to it, I'm going to post Hailey's birthday pictures and some others of her. I'm just lazy and depressed at the moment. My life isn't going exactly as I hoped it would, but that happens to the best of us, it's just that I can't get over it.

Ho hum.

Friday, October 17, 2008

Halloween, Christmas, no money oh my!

I still have to get Hailey's costume, and Tre's (Hailey's daddy/my bf) little sisters present for her birthday annnnndd start Christmas shopping. It's going to be soooo fun with the $94 checks i get every 2 weeks (pouts). I still also have to buy diapers/food/gas/insurance/meds/wipes etc. If Hailey didn't get SSI I would be ruined. I still have to check out her daycare situation and my school situation which is looking better since it's only going to be $7295, and I'm going to try to get grants if I can and apply for scholarships. If anyone knows anything about financial aid, let me know.

Tre won't be home for Halloween, but he's working so it's OK. We really need to move out so we can be a "real" family and he can interact with Hailey on a daily basis and see who she actually is. We just don't have enough money right now. I have medical bills I have to pay (only about $300 but still) his car broke down, I have a crappy job, and I don't want to move out with a loan out. I don't know people deal with it, but they are amazing. I can't get a job because I don't know my school schedule and I would never see Hailey really. I only work 3 days a week and Hailey has therapy every day but Wednesday.

I want me or some family member to be with her when she has her therapy, but that's not possible. How do you guys deal with not being with your child during therapy's if your child is in daycare/school? I just don't want to miss something or do something wrong and mess up all her progress.

She's getting her hearing tested soon, and hopefully that will help with her ST. I don't know if she just doesn't pay attention or she doesn't hear well so I wanted it tested. And she's having tear duct surgery in Feb. I'm scared about her being put under again, but I'm sure she'll be fine. It's only going to be an hour surgery, which is ALOT shorter than her first one, but still, they're cutting on my baby. It's horrible, but it's going to help her so its OK.

I'm going to take a nap before work, I'm exhausted since Bean woke up at 2am.