What to say about Hailey?
Gah, I don't know, except that she's wonderful! She was born on August 6, 2007 and the only way my father remembers her birthday is from that song 867-5309 since her birthday is 8-6-07, funny huh?
Anyway, soon after I found out I was pregnant I went to the doctor to have a routine ultrasound. Everything looked wonderful said the tech. But of course 3 days later I get a call from the hospital saying that there looks to be something wrong with my baby's heart, and also her left foot. I panic because they didn't say anything else, they just left me with baby-heart problems-18 years old-still in high school-OH MY GOD. I was sent to a maternal fetal medicine specialist who did extensive ultrasounds and said that what they saw on Hailey's heart was called an
echogenic focus (an "echo" of light from the back of the heart) and that this along with the abnormal toeing of the feet were soft markers for Down syndrome. I brushed it off, because hey I'm only 18 and babies with Down syndrome are only born to old ladies (LIE).
The specialist wanted me to come back for some more ultrasounds for a
nuchal fold test. During this ultrasound, they discovered that Hailey most likely had a condition called duodenal
atreisa (narrowing of the lower intestine) and this ALSO mainly occurred in fetuses with
DS. They couldn't confirm the DA even though I had
lvl 2 U/S every week until I had Hailey. I was soon put on bed rest due to low fluid levels, and the low fluid levels conflicted with the DA diagnosis because usually with DA you have EXTRA fluid. ( OH, I wonder why I had low fluid levels, they only had me walk around the
NICU of Riley Hospital and the birthing suites of
IU). The last doctor who did my U/S was trying to force me in to getting an
amnio and gave me late term abortion brochures just in case she did have
DS. I repeatedly told her NO for the
amnio, that I didn't care if my child did have
DS I was going to give her a fair chance to prove herself and to prove that doctor wrong!
I was scheduled to be induced on August 13
th 2007 at
IU Hospital so I could be closer to Riley Hospital (they are connected) just in case Hailey had serious heart problems. Well that didn't happen because my little bean had a different schedule. I had labor pains for a couple of hours, but I really just thought I had to poop
LOL! At around 3am I called my
step mom (I was at my boyfriends house at the time) to come pick me up and take me to the hospital. I didn't want to wake my bf up just in case it was false, because he had to work at 9am. I got there and they checked me and said I was.....8 CM dilated. As soon as I stood up to put my pants back on my water broke (all in my shoes too!) and my
step mom called my bf and told him to hurry that he was going to be a daddy soon.
I was pushed for about half an hour and out popped the
bebe! They rushed her off to a corner of the room where about 5 doctors checked her out. Finally they let me hold her while I was being stitched up (10 stitches!) After the awesome 10
mins of holding her they whisked her off to get X-rays of her heart and belly. After about an hour the doctors came back and said they didn't' know anything, that they were sending her to Riley for further testing. I wasn't allowed to go because I was bleeding too much but my bf and
step mom went down there with her and I came about an hour later. At Riley they told me that she DID have duodenal
atreisa and it would need to be repaired ASAP. The surgery was scheduled for the next day.
The next day the surgery happened and she pulled through like a trooper and the surgeon told met that the reason they couldn't get a clear
DX of the DA was because her intestines were backwards. How the hell did that happen? They also did a biopsy for
Hirchsprungs and a blood test for the
DS. 4 days later the results came back. Positive for
DS but
negative for
Hirchspurngs. A month later Hailey was released from the hospital with only a feeding tube which she only had for about a month and a half.
Today she eats like a little hog, can sit up by her self, finger feeds, babbles wonderfully, crawls, holds her own bottle and is trying to cruise! She is a little miracle and I love her more than I have ever loved anything ever.
I'm going to bed, since it's 2am...Jesus I love my days off!